Watch BREAKFAST 7.40am Monday!! Story on Oscar's Life Fund!! AND check out over $10,000 worth of stuff on trademe.co.nz on Monday. Search members: oscarslifefund http://www.trademe.co.nz/Members/Lis...

Hello I am Liam Daly-Hardie. I am 2 years old and I was born with a rare disorder called “Septo Optic Dysplasia”. It’s a very complicated disorder and would be too difficult to explain properly here, but I will tell you what it means for me.
1. When I was diagnosed my foster parents were told I was totally blind. No glasses, surgery or treatment would correct this.
2. My pituitary gland does not work so I cannot maintain my Blood Sugar Levels. I spent most of the 1st 18mths of life in and out of hospital, critically ill. My BSL’s would drop dangerously low and it would take days of treatment to correct this. I used to have to have my blood sugar levels checked every hour.
3. I can’t maintain my own temperature so I have to have my temperature checked all the time to make sure I don’t get dangerously cold.
4. I don’t produce enough thyroid so I have to take medication for this, otherwise I am very tired and unmotivated.
5. I don’t grow. I am still only the size of an average 9mth old baby. Because of this I have started on Growth Hormones so I have to have an injection every day.
6. Probably the most embarrassing thing for a young man is that I have what the doctors call a “micro” penis. I’m sorry to mention that but it is, or will be, a major issue if I don’t respond to treatment.
I was lucky enough to go to Mexico for the 1st time with Oscar in February 2009. My foster parents paid for me to go on this occasion because Oscar’s Life Fund had focused on raising money for his treatment. His parents were young and had very little money to pay.
The Stem Cell Treatment I received has made the most amazing difference to my life. I CAN SEE!!!! Nobody, “except me” (and I’m not telling yet), can tell just how much I see but I am definitely NOT completely blind like I was. Now the lady who assesses my sight says I can see “at least” 6 inches in front of me. My foster parents believe I can see further than that. They will know more as I grow up and can tell them.
I can talk like a book now and I sing whole songs, like Twinkle, Twinkle Little Star and The Alphabet Song, from start to finish.
The very best progress I have made is with my Blood Sugar Levels. I have only been hospitalised once since I came home from Mexico.
I can maintain my blood sugar at a healthy level. As such my life is not in danger on a regular basis like it used to be. Now I only need to have my blood sugar levels checked twice a day. Even then, it is more to keep the adults around me comforted, rather than being entirely necessary.
I would really love to go with Oscar again in November. My foster parents really believe I will make a lot more progress if I get this second treatment. Unfortunately they can’t really afford to pay for me to go a second time just now. I am asking all you good people to help me. Please support Oscar’s Life Fund to raise enough money to pay for both Oscar and me to get this life changing treatment. Oscar and I are good mates and he would love for me to get the same opportunities as him. Please Help!!
Any and every donation is greatly appreciated no matter how small. Donations to Oscar’s Life Fund can be made at any branch of Westpac, Account Number: 03-0854-0815502-00. Thank you and a special thanks to Westpac for their support.
Please visit our online auction starting September 21st, search Members for oscarslifefund at www.trademe.co.nz

Hi everyone, Claire - Oscar's aunty here.
I am going to be updating this page and getting Oscar's website back in action as we get underway with fundraising again for Oscar (and Liam's) stem cells in November.
Have a read of some of the things I am going to add to the blog.
Love to you all,
Thanks for your support,
any help with fundraising... donations, ideas etc appreciated!
Love Claire