Live Life Then Give Life
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Female, 35,
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- Profile views: 3,395
- Member since: December 2006
- Last active: 6 weeks ago
- www.bebo.com/LLTGL
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- Tagline
- Promoting the Gift of a Lifetime
- Me, Myself, and I
- LLTGL is a vibrant organ donation charity based in the UK.
Our Aim:
To encourage people to think and talk about the subject of organ donation and to try and encourage people to take the proactive step of signing the organ donor register.
It takes no money, no effort, and just two minutes of your time to register to save lives.
SIGN UP NOW:
Organ Donor Line 0845 60 60 400
https://www.uktransplant.org.uk/ukt/...
Please tell your loved ones your wishes.
Would you save a life if you could? We are the next generation; time to spread the word by declaring “I'd Give You One…!"
Want to know more?
Watch this: http://www.youtube.com/watch?v=Nz33i...
Read this: www.lltgl.org.uk
Registered Charity No 1123333 - How can you help?
- - Sign up! https://www.uktransplant.org.uk/ukt/...
- Fighting With Fashion:
- Wear one of our super-cool T-shirts with the slogans "I'd give You One..." or "Live Life Then Give Life". Wearing one will show your support for one of the hottest fashion campaigns around!
Visit www.lltgl.org.uk for more information on how to get your hands on one. - Celebrity Supporters of the LLLTGL Campaign:
- Bill Bailey, Liz McClarnon, Sharon Osbourne, Richard and Judy, Lorraine Kelly, Sinitta, Trisha Goddard, David Gower, Max Clifford, Kerry Katona, Kate Garraway, Andrew Castle.
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Is an opt out system the answer?
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Are you on the NHS Organ Donor Register?
- Yes I am
- No - I'd like to but don't know how
- No - I haven't got round to it yet
- No - I live outside the UK
- No - I don't believe in organ donation
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The definition of Challenge.
Monday, 31 August 2009
The definition of Challenge.
What is a challenge?
To many of us out there, testing ourselves physically would involve something like a Marathon, or climbing a mountain.
On Sunday 6th September, two of our Advocates are taking on physical challenges to raise money for LLTGL. To understand just how these are challenges however, you have to know a bit about these girls.
On Sunday morning, Jess will be participating in the Adidas Challenge 5k, around Hyde Park. Jess has been waiting for a transplant for over 4 years now, and her lung function has dropped to a frighteningly low 11%. Jess needs oxygen 24 hours a day and often requires a non-invasive ventilator to help her breathe. She is going to try and walk as much of the 5k as she can. Considering that at this stage of lung disease, simply sitting up is exhausting, this is going to be very very hard work. You can watch her video here, and more importantly, sponsor her here.
Lou is one of a kind. She is constantly having new battles thrown at her, but still she keeps going. From childhood cancer, to end stage lung disease, this girl never loses her smile. Now post transplant, she is suffering severe complications, including a form of post transplant cancer and heart failure. Lou's body is still taking a battering - walking is out of the question. So Lou is testing her body in a different way, by hugging a tree without a break for 2 hours. For Lou, this is a huge challenge and will take a lot of mental determination to keep going. Take a look at her video here and her justgiving page here.
Both Lou and Jess are hugely inspirational to all of us at LLTGL. They constantly defy Doctors by getting up, brushing themselves off, and ploughing forwards once more. We are so very proud of them and wish them the very best of luck for Sunday.
x0 Comments 74 days
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Advocate away weekend.
Monday, 24 August 2009
Advocate away weekend 2009
Photos courtesy of Sarah Milne www.giftsoflife.co.uk
On Saturday 22nd August, the LLTGL advocates gathered in London for the first (but definitely not last!) away weekend. We were thrilled that most could make it, but missed Jac - who has only recently joined the team so didn't have enough notice, Nyila - who is on Maternity leave having just had a beautiful healthy baby boy, and Jess - who sadly was just not well enough.
The assembled advocates got stuck straight in on Saturday morning and their enthusiasm immediately lit up the room; we knew straight away this was going to be a great weekend. For many of the Advocates, it was the first time they had met each other, and for some, it was the first time they'd met any of the LLTGL team. Everyone got on fantastically and bonded over spaghetti and marshmallow towers (there was a purpose to this) and cups of tea.
The weekend was full of great experiences and plenty of hard work; from brainstorming, to managing complex scenarios, from giving talks to learning from presentations. There were also some some very emotional moments as personal stories were shared and memories of transplant journeys relived, met by an empathy and understanding that can only be shown by those who have trodden that same path.
Trustees Emily, Pops and Mandy all attended and had a fantastic time getting to know our Advocates that bit better. We've said it once but we'll say it again; we're hugely proud to have each and every one of them on board. Look out for more pics coming soon!
*Edit* - For first hand accounts from the advocates themselves, check out Lou and Holly's blogs about the weekend!0 Comments 81 days
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Charity Movements and Changes
Sunday, 16 August 2009
Charity Movements and Changes
Lots has been going on behind the scenes at LLTGL recently so we thought we'd update you with what some of our Trustees have been up to!
Firstly, there have been a few changes to the trustee board this last month. With great regret our Chairman, Oli Lewington, has decided to step down due to personal circumstances. We are very grateful to Oli for his contribution to the charity this year and are delighted that he will be continuing to work with LLTGL. We welcome Emily Thackray into the position of Chair following Oli's departure. Kidney recipient Mandy Venters has also joined the Trustee board, bringing with her a wealth of knowledge and experience as you will see from her biography which will be up on the site soon.
Our lovely Jen Dickinson has jetted off to Kenya for a month, and co-founder Emma Harris is excited to announce that she's going to be a mummy in 5 months time!
So lots of movement and excitement going on here at LLTGL HQ! All of us are looking forward to the months ahead, especially the launch of key projects currently under development, and as ever are grateful for the continued support of our wonderful LLTGL Advocates, volunteers and supporters.0 Comments 95 days
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5 days ago via Mobile
Sara
Princess Gedi got her lung transplant on wed!! Ye-ha!!
Wishing her the best recovery and love her to pieces. -
18 weeks ago
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Jay Aka LiL-Raver18 weeks agoYeh it was great to hear he got it
Yeh i'm doin oki just out of garter's today was in for a week n half for iv's doing the rest at home now tho the place was drivin me nuts
Hope Em n Em are doin fine n all the team at LLGL
x
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19 weeks ago via Mobile
Jay Aka LiL-Raver
Hi guy's jst on to say thanks again for the add again, hope ur all doin well keep up the good work, oh my friend thomas who's on my friends list jst got a kidney tx a couple of wks ago n is recoverin now.
x
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23 weeks ago
Victoria Glen
Hi Guys!!
Sorry I forgot to get back to you after your last comment!! I'm doing good now on my fourth false alarm call with another one due at any time (seems to be every 7 weeks or so) How are all of you?
V x -
36 weeks ago
Victoria Glen
Hello LLTGL!! I am good thank you for asking. I just had my third false alarm call, they really want me to work for those lungs
How are all of you? xx - 37 weeks ago
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50 weeks ago
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Gerard Fay98 weeks agoHey Emma Emily,
Just wanted to send you a message to wish you and you family and happy new year. Lets hope it will be a good 2008 -
Missy Nee98 weeks agoHiya hon,
How was your Christmas ? hope you had a good one. Hope your both keeping well
I'm doing ok, christmas went well though the flu has come for a wee visit. never got round to sending x-mas msg's christmas sorta crept up on me this year! I hope you have a good night on new years
Grá mór & poígíní xx xx xx -
Margaret J113 weeks agothankyou for add me
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Holly- May Humphrey121 weeks agoHi Emma and Emily!
How are you both doing?
I just thought i would let you know that a while ago i made a video on cf and organ donation, i tried to get it on youtube but it always went weird, just thought i'd say it's on my bebo now, so feel free to check it out and comment on it.
Hope your both ok!
Huge hugs and kisses. x -
121 weeks ago
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Lady Rosie Fitz121 weeks agoAh now Emma, you know me!
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Holly- May Humphrey122 weeks ago
Hi Emma, and Emily. Your bebo is really good, and i just wanted to say hi. I recived my lltgl top today, and i love it. Im going to order lots more! Hope your ok, and if you need help with any campaigning ect, give me a shout! x
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122 weeks ago
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Orla Tinsley122 weeks agoHi there, Just wanted to say Hi. I emailed Em a while ago. My name`s Orla, from Ireland and have cf. I`ve written a few articles about cf services and lack of facilities over here. Fighting hard for cf here too. Hope you`re both well. xx
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Miss Nicola127 weeks ago
Oh My goodness I haven't said Hello in ages!!!
How bad is that!!!
I know it's been far too long but Hello and hope everything is all good with you.
xxx
I'm doing fine as usual.
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This Beat Is Crazy' 0 Replys+ . . * + . + * . * +
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This is for Emma (obviously), Happy Birthday!! Ignore the fact that this cake resembles something more along the lines of a wedding cake...Inuslin may be required. Have a goodun!
Lady Rosie Fitz 0 Replys