Extra Special Parents

Guys.... put the Extra Special Parent's App on ur profile... c'mon do ur good deed for today!

91 weken geleden | ik ook! | Antwoord

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we care because you care
Me, Myself, and I
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Extra Special Parents is a support forum for parents and carers of children with all kinds of additional needs. Established in January 2006, ESP hopes to become a registered Scottish charity in 2008

HTTP:/ /WWW.EXTRA-SPECIAL-PARENTS.ORG

afsluiten Blog

  • We're famous

    we have had some massive exposure this weekend. Ken Banks, our local (NE Scotland) BBC reporter ran a story about ESP in the Scotland News and Health News sections and we've had a huge response so far.

    To read the story and see the pics click this link http://news.bbc.co.uk/1/hi/scotland/...

    We have had over 1200 visitors to the site since the article went live.

    If you still haven't joined the online forum, please join us at http://s2.excoboard.com/exco/registe... where you will find a comprehensive message board that covers every type of special need - from food intolerances, "hidden" conditions like autism, diabetes adhd, and dyslexia to cerebral palsy, PKU, and even terminal illnesses and those with children who are not yet diagnosed. As well as talking to parents and carers who have children with the same condition as yours, there are information sections on benefits, financial and practical help. And a place to relax, have a laugh and a chat and forget about your worries for a wee while.

    The BBC did a wee follow up story today http://news.bbc.co.uk/1/hi/scotland/... and my dulcet tones were also on BBC Radio Scotland :)

    0 Commentaren 626 dagen

  • Ten Commandments for Parents of Special Needs Children

    1. Take one day at a time, and take that day positively. You don't have control over the future, but you do have control over today.

    2. Never underestimate your child's potential. Allow them, encourage them,expect them to develop to the best of their abilities.

    3. Find and allow positive mentors: parents and professionals who can share with you their experience, advice, and support.

    4. Provide and be involved with the most appropriate educational and learning environments for your child from infancy on.

    5. Keep in mind the feelings and needs of your spouse and your other children. Remind them that this child does not get more of your love just because they get more of your time.

    6. Answer only to your conscience: then you'll be able to answer to your child. You need not justify your actions to your friends, relations or the public.

    7. Be honest with your feelings. You can't be a super-parent 24 hours a day. Allow yourself jealousy, anger, pity, frustration, and depression in small amounts whenever necessary.

    8. Be kind to yourself. Don't focus continually on what needs to be done. Remember to look at what you have accomplished.

    9. Stop and smell the roses. Take advantage of the fact that you have gained a special appreciation for the little miracles in life that others take for granted.

    10. Keep and use a sense of humor. Cracking up with laughter can keep you from cracking up from stress.

    2 Commentaren 788 dagen

  • Calling all Scottish parents

    we are currently looking for parents and carers of children with special needs to talk to a local paper. They are looking to do a case study on a family that is affected by a demanding special need and how ESP has helped them in some way.

    if you fit the bill and would like to talk to them please email me at wiccababe@extra-special-parents.org

    2 Commentaren 861 dagen

afsluiten Forum

  • 2nd Annual ESP Meet and AGM

    Debbi G door Debbi G
    Saturday 5th and Sunday 6th April 2008
    Gullivers World, Warrington
    0 Reacties 116 weken
  • Scottish Meet

    Debbi G door Debbi G
    The 1st ever Scottish ESP Meet will be held at Noah's Ark in Perth on Saturday 11th August.

    All members of ESP and their families are more than welcome to attend, and it would help immensely if you could let me know if you'll be there.

    There is plenty to do, soft play areas for up to 12's, karting, bowling and even a ceramics barn

    I can email directions
    0 Reacties 123 weken
  • ESP Meet 2008 Poll

    Debbi G door Debbi G
    I've put up a poll to see where is the most popular venue for the 2008 national meet.
    It will be during the Easter Holidays 2008, date tba.
    It needs to be somewhere reasonably central so either west yorks or the midlands.
    Alton Towers was a hit for some of the parents in 2007 but it isn't ideal for some of the younger kids so I'm open to suggestions.
    If anyone in the Midlands has any ideas please let me know, I need a venue with plenty to do for all ages for a whole day.
    0 Reacties 123 weken

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door Debbi G
122 weken geleden

afsluiten Commentaar

  • Young Mums
    Young Mums

    JOIN THIS GROUP NOW

    YOUNG MUMS & DADS


    ( JOIN NOW & MEET YOUNG MUMS AND DADS )

    MEET NEW FRIENDS JUST LIKE YOU...

    SHOWING SUPPORT FOR YOUNG MUMS & DADS.

    41 weken geleden
  • ADele Stein Aka Dellza Xx
    ADele Stein Aka Dellza Xx

    MY SON HAS AUTISM XX

    43 weken geleden
  • YoBaby
    YoBaby

    Hi, I'm Jennie, (aka Ms-Vegan). I'm 39, blind from birth, have epilepsy, and am mum to 3 lovely teens, the youngest of whom, Ross, is profoundly autistic. I have raised the kids primarily alone, not easy, and Ross's behaviour has been dreadful! He's much better now, almost like any other teen without the language, but it hasn't always been that way. I use bebo to make friends and chat because other sites are too complex for the speach software I use. Any parents wanna add me and chat, my profile's public, I talk to ppl all over the world, I don't bight! I would love to offer support to anyone struggling, there IS often light at the end of the tunnel, I promise! Ppl say I inspire them, because my blindness coupled with Ross's autism hasta be the biggest challenge ever . . . ask me? Much love, Jennie. Great page, will join now. xxx

    44 weken geleden
  • Emma Gardner
    Emma Gardner

    hi ,my name is Emma & i a have a 2 yr old daughter with GDD & dysmorphisms, paeds think prob caused by a gentetic disorder. i also have 3 boys 12, 10 & 5.
    a lotta hard work but i wudnt change ny of them 4 the world!
    im currently studyin 2 hopefully become a social worker, think i must thrive on the stress!!!!

    big hugs 2 every1
    loadsa luv em xxx

    feel free 2 add me if u want, i luv a gd blether! lol

    54 weken geleden
  • Eggs And Toast
    Eggs And Toast

    Hi Im a mum to Josh, hes 4.5 and he has epilepsy and they reckon he has ADHD(remind me that when he gets up at 1am every morning!)

    I have a wee group for positive parenting http://www.bebo.com/parentingpositive
    to help parents, of ALL kinds, learn how to parent their child without hitting or yelling at them... Mums and dads of special little monsters would be great cos then we could share tips especially for them in mind!

    54 weken geleden
  • Lisa Robertson
    luv Lisa Robertson

    hi my name is lisa and a proud mum to my wee girl sarahlouise who is 10, she has been through a lot in her little life but is a fighter she has a new syndrome a multiple heart defect an eye defect global development delay and is slightly brain damaged, but despite it all i wouldnt change her,

    55 weken geleden
  • Bebochickxx
    luv Bebochickxx

    hi my name is kelly we have a lil girl who is weeks old and we found out she has got cystic fybrosis . we also have a lil boy who is 3 and he is fine. anyone who fancies making a new freind then feel free to add me x

    56 weken geleden
  • Emma Matthews
    luv Emma Matthews

    Hi my name is Emma i have beautiful son called carter who suffers a rare complex polymorhyous epilepsy seizing up til 16 times a day cant walk, talk or oral feed as a result of uncontrolled seizures we are currently in the states seeking a 3rd opinion for our son as we dont know wat the future holds for him otherwise. We have had to fundraise to get here and launched an appeal £180,000 in order to do this we havent achieved our target as yet but enough to get us here to start the initial testing!!!!

    60 weken geleden
  • Tracey-Anne Henry
    luv Tracey-Anne Henry

    Hiya everyone.

    My son is almost 6 and was diagnosed with autism in May. He is a little star and we love him to bits! :D


    A great page by the way! :)
    xxx

    60 weken geleden
  • Suzy And Mummy
    luv Suzy And Mummy

    hello parents,my daughter suzy has hydrocephalus (with v.p shunt)and resulting c.p
    (quadraplegia)she's sometimes prone to seizures.she has a dislocated hip as she doesnt weight bear,near has,never will they say.
    she's a happy chappy and thats all that matters.

    68 weken geleden
  • Orange Ribbon Campaign
    Orange Ribbon Campaign

    I dont mean to advertise but I have made a new group and I think many of your members may be intrested, its a support group for dyspraxia sufferers and thier parents,
    Luv is rare. You can only give it 3 times a day

    69 weken geleden
  • Xx Little Miss Marisa Xx
    Xx Little Miss Marisa Xx

    hi everyone my name is marisa and i am mum to james who is 3 and has brain condition called lissencephaly which basically means his brain is smooth and he also has epilepsy, james is very developmentally delayed and doesnt communicate but he has the most beautiful smile and loves to laugh anyone wanna talk feel free to add me xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
     xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
     xxxxxxx

    69 weken geleden
  • Living with Hydrocephalus
    Living with Hydrocephalus

    hiya i have set up a forum for advertising groups. if you want to add yurs then please feel free.

    75 weken geleden
  • Soap McTavish
    luv Soap McTavish

    my love goes out to all of you x

    77 weken geleden
  • Ashley James
    Ashley James

    hi there i have added this band to my page.

    Im Aj mum to a very lovely 2 n half year old boy called Oliver. when i had my 20 week scan he was told to have Clubbed feet. i think this has made me a stronger mum more protective of him. when he was born on the 6th December 2005 his big toes on both feet could touch hes calf muscles ooohhh it was had to keep myself from crying but his all better now only having to wear boots n bars at nite time

    these are his boots n bars

    77 weken geleden
  • Living with Hydrocephalus
    luv Living with Hydrocephalus

    Hi my son has hydrocephalus so i set up this group
    to raise awareness. feel free to take a look.
    xxxx

    78 weken geleden
  • Von
    Von

    Hello everyone! Hope you all had a good bank holiday?

    I have just joined, My son is 3 1/2 and has cerebral palsy, He was born at 24 weeks, 16 weeks early!
    would love to chat to other members of this group, so feel free to add me or leave me a comment, I will always reply back! :)

    xxx

    78 weken geleden