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Been so long since I updated this and so much has happened. I am walking (albeit still with alot of pain and not as far as I used to) and for that I am more than thankful. My little Antony was born by c-section on the 21st May 2008 at 37 wks and was taken to the neonatal unit as his apgas score dropped - he was having probems controling his temperature, they hadnt even weighed him yet. The next two days were tough there was the conflict between trying to move about so my wound would heal but not cause more pain than needed to my pelvis. All I wanted to do was sit with my baby boy. He was 7lb 2oz, a good weight for 37wks but he looked so poorly in the incubator. All was well though he competed a course of anti biotics and was returned to me on the ward. The next day I was itching to get home (had been in for 2weeks prior to the birth) and thankfully was allowed to. I missed my family so much. Life is wonderful with the wee man and Sarah has recently been given the all clear for her kidney problems she was on long term anti biotics for which was a huge relief. I am back at college two nights a week doing my PDA (cassroom assistant) as my physio told me to forget nursing as it seems when I was in labour with Sarah my tail bone got broken (I now feel like I am sitting on a tennis ball - its agony) and have also been diagnosed with Hypermobility syndrome which apparently is the reason for my ME and other health problems and why it was never picked up on before no one knows. I am waiting to see an orthopeadic surgeon to see if surgery will help my tail bone and my knee and if there is any other help I can get (I stil have to use my crutches on bad days). Within myself though I have not been happier I have the most amazing husband and three most beautiful children and my outlook to life is totaly different I can now see that I am a survivor not just of my health but also of things that have gone before and I have so much to be thankful for. Every day is a blessing and everyday I can walk is a bonus. OK so I need to use my crutches the odd day (prob more than I do) and I need to stay in bed and rest more than I woud like but to see the smiles on my kiddies faces and hear them laugh makes my life compete.
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Thats me had my first appointment at the pain clinic and I love my doc!
My GP had said no to expect much with being pregnant but to go to "keep me on their books" as it turned out it went very very well. He has given me my own TENS machine to use as much or as little as I need and its mine now too. Just need to figure out how to use it so it works best. Its really small so I can wear it out for appointments and stuff (when my pain is really bad). He has also recomended an early section (was having one anyway) and one the baby arrives I am to have an MRI scan and be reffered to the surgical team for treatment. All in all it was a result as when I was living in Ayr had asked about using TENS for pain relief I even didnt mind having to fork out for one but got a load hums and haws so am really hoping it makes a difference.
Nevt appointment is Friday with my consultant. I am a wee bit anxous about that as my lovely Dr O has retired so this is a new consultant but am sure it will all be ok and I should be getting the date for my section. It will be a bit easier knowing I have an endpoint to work to I just hope that she decides that the physio and GP advice of a section at 3wks is too soon I would rather 35 or 36wks. Just need to wait and see now
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Sorry not been on but been away to Centre Parcs for a wee break (it was the only thing keeping me out of hospital the past few weeks too) and it was great. My hubby hired me a wee moblitity scooter that was actually quite comfie to get about and the staff were fantastic I cannot praise them enough nothing was too much regarding helping me and they managed it all without being patronising too - well done centre parcs! I even managed into the pool which was sheer bliss having my bump supported. The rest of the family had a great time too and I actually managed to sleep while I was there too (the bed was sooo comfie) recomend it to anyone.
Anyway the rest has also given me loads of campaigning ideas too so will keep you all posted. Hope you are all coping and keeping well. Linds xxx
HI thats my baby nearly 6 months and I am still on co-codamol (30/500) and suffering but hey at least I an walk now. I am atually better walking than sitting as I have tthe feeling that I am sitting on a tennis ball (my tail bone was broken during labour with baba no 2) but am still better lying down (though not much) I count myself lucky but I still get really down about it. Waiting to see an arthopeadic surgeon so here is hoping. Love to you all who have pain Linds xxx
I had SPD 7 years ago when i was pregnant with my 4th child - I was bed-ridden for 5 months of my pregnancy and had to take meds to get any sleep. I had no mobility at all.
5 months ago , it appeared again - completeley out of the blue !
No , i am NOT pregnant ( although i had been sterilised , even i didn't believe that - so i did 2 tests ! )
I have had physio , and gained a little mobility . . . But i have found that i can't bend , I can't lift and my walking is limited.
I have 4 kids , the 2 eldest have moved out .... I have my & yr old and 5 yr old at home , and they have gotten used to mummy has sore legs . . .
I am a work in progress
I
Hi i also found use on bounty... This is a brill profile!
Im 32 weeks preg atm with my first baby and have severe spd, started of on crutches and a support belt, now in a wheel chair and bed rest, worst pain and discomfort ive ever felt in my life!!! Really hoping it goes away as fast as poss after the birth so i can look after and enjoy my new baby!!
SPD defintly isn't know enough to the world, i had no idea wat was wrong with me untill i was diagnosed!
Hi there
Saw this on Bounty, I think this is a great idea setting this up and hope it raises awareness. I had it with my last pregnancy and was on crutches towards the end of the pregnancy. I'm 16+3 and have started to feel the twinges already.
Hi there. I too have been really suffering this time round (my second pregnancy with SPD I didnt have SPD when pregnant with my son) I am 25+2 and they are talking about delivering baby at 34wks as am having some complications due to the SPD but am really hoping it doesnt come to that. I have been talking to so many sufferers (on bounty mostly) who have been badly treatedand given bad advice that I got really angry and now I really want to raise awareness. Fisrt time round I was just so glad that SPD didnt harm babies but what about us mums - PND is higher in sufferers and a small percentage never recover (around 1% although if bad advice is followed that percentage will be greater). This group is the first step for me and I hope that you too find comfort and support here and as I said before any suggestions or comments are great lets get our voice heard ladies! Linds xxx
hi, i also saw a post on bounty. i'm 15+6 with number 2 and its really hit me hard this time, can barely walk sometimes! drad to think what the next 6 months will be like! just a shame so many ppl dont take spd seriously. xx
HI I saw your post on bounty as well. I am 20+2 this is my 6th pregnancy. I only have 2 living children. My spd is really bad this time. Saw a physio last week and my sacrum has twisted and is putting pressure on my hips which in turn has caused my pubic bone to come out of alignment. I am doing the exercise she recommended but no improvement at the moment. It is nice to know i am not the only person going through this.
Hey hun
I saw your post on Bounty, Im Maggie from Glasgow. Ive now had my baby - shes 5 weeks old and my SPD is MUCH better now = although still the odd niggle.
Good for you setting this up
Well thats it for now but will keep checking by this page every few days to say hello
Best of luck to all you Preggers girlies out there
Maggie