 | 
| What is Huntington's Disease (HD)?
HD is a hereditary degenerative disorder which usually occurs in adulthood. It affects people physically, cognitively and emotionally.
What is the SHA Youth Service?
We offer children and young people living in a family with HD individual confidential support; accurate age appropriate information; group activities and outings; a regular newsletter; a website and chatroom, and support for parents in telling children. | Gender | | | | Female | | | | Last Active | Profile Views | | 1 day | 460 times | | | Share the Luv | |  | 4 |
| | | | Sha Youth's URL | | http://www.bebo.com/SHAyouth | | | Member Since | | | June 2007 | |
Sha Youth says: "Our BEBO page is a place for young people to meet with others living with HD. PLEASE DO NOT ABUSE IT OR PEOPLE ON IT :-) " (33 weeks ago) me too! | | How To Contact Us | | If you are growing up in a family with HD in Scotland follow the link to to our website where you will find information for children and teenagers about HD. Please go to: www.hdscotland.org/youth. If you would like any more info about HD, or the Youth Service, you will also find the contact details for our two Youth Advisors Karen Keenan (North/East Scotland) and Kirsten Walker (South/West Scotland) who will be happy to hear from you. | | | NEW GROUP | | The SHA have launched a new service group for young adults aged 18-25. The group will look at service gaps for the age group and help design services to better support young adults in all avenues in their future planning. The group has met twice already and we are planning to meet up again on Saturday May 10th in Glasgow (Waxy O'Connors, 1pm near Queen Street Station). Even if you don't fancy coming along but want to know more info about issues facing young adults then pleace check out our new website when it goes live in a few weeks as there will be a section especially for you. | | | Junior Camp | | The Junior Camp for 8-12s will be at Dalguise in Perthshire on the 11th - 13th of July 2008. There will be a range of exciting and challenging land and water based activities such as canoeing, climbing, abseiling, ropes courses and so on. Please see www.pgl.co.uk/PGLWeb/Families/centre... for more information about Dalguise. | | | Senior Camp | | The Senior Camp for 13-17s will be held at The Fairburn Centre near Inverness on the 25th - 27th of July. Again, there will be a range of land and water based activities, and the chance to do paint balling too! Please see www.fairburncentre.com for more information about activities and accommodation (especially the jacuzzi baths!). | | | News | | As you all know by now Catherine has left her role as Youth Advisor with the SHA but she will still be involved with the service as a volunteer when she returns from her trip to New Zealand (thanks Cat!). We are really pleased that a new Youth Advisor has been appointed to cover the South/West of Scotland. Her name is Kirsten Walker and she started on Monday (April 28th)! Kirsten is going to spend a few weeks learning about the project and then I'm sure she will be in touch with everyone in the South/West. A huge welcome to Kirsten from everyone at the SHA!! | |
|
