Brain Tumour UK
- Motto
- Support when you need it
- Ja, o mnie i jeszcze raz ja
- Each day about 50 lives are shattered due to the devestating diagnosis of a brain tumour. We are a national charity working to:
• Increase awareness and knowledge of brain tumours and research into the disease
• Improve access to information and support, and enhance treatment and care;
• Raise money to fund an extensive programme of research, education and support.
This group operates under Bebo's Terms of Service. We may remove or limit access to members who post Materials that we determine in our sole discretion are unlawful, fraudulent, threatening, libelous, defamatory, obscene or otherwise objectionable, or infringes or violates any party’s intellectual property.
zamknij Blog
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Our Patron Phil Tufnell stars on Strictly Come Dancing
Brain Tumour UK Patron and renowned spin bowler Phil Tufnell is to star in the BBC's seventh Strictly Come Dancing series from September. He'll be dancing with Katya Virshilas who trained Richard Gere and Jennifer Lopez for the film Shall We Dance. This is her first appearance in Strictly, so the duo will face strong competition.
Looking forward to the demanding show, Phil says: “Strictly Come Dancing will be a huge challenge, but it’s nothing compared to living with a brain tumour. A brain tumour can affect co-ordination, balance, movement and any other activity controlled by the brain. Dancing with or even talking to someone you love can be impossible. Having seen the impact of this disease on two of my cricketing pals and their families, I know only too well how devastating a brain tumour can be, which is why Brain Tumour UK is so important to me.”
If you're a Strictly fan, do take every opportunity you can to vote for Phil and keep him in the show: Phil has promised to get us all the publicity he can for its duration, to help raise awareness of brain tumours. You can keep tabs on his progress in the show here. http://www.bbc.co.uk/strictlycomedan...0 komentarzy 89 dni
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Proton Therapy
Brain Tumour UK has welcomed the Government's announcement that a specialist proton therapy centre is to be built in the UK over the next five years to treat brain and spinal chord tumours [1]. But the charity warned that the centres should be the focus of carefully designed scientific research to ensure that the true benefits of the therapy are measured. Furthermore, the therapy will not be of benefit to the most common brain tumours, including gliomas, meningiomas and secondary brain cancer. It will largely be used to treat rare tumours at the base of the skull, including chordomas and chondrosarcomas.
Proton therapy is a form of radiation therapy that has been in use since the 1970s. Proton particles have a large mass and should not spread so far in tissue with the result, in theory, that healthy, non-tumour tissue receives less harmful radiation. This means that a tumour could be given a larger dose of radiation than with normal radiotherapy, whilst causing less harm to the healthy brain.
But although the therapy is theoretically promising, Brain Tumour UK warns that there is a lack of robust evidence to show that it offers significant clinical advantage over modern radiotherapy. A substantial review of the evidence for proton therapy has concluded:
"The claim by proton therapy supporters that protons are the treatment of choice for chordoma and chondrosarcoma [tumours at the base of the skull] is no longer tenable based on the currently available evidence." [2]
Trevor Lawson, a spokesman for Brain Tumour UK, commented:
"The challenge here is that new technologies do not have to clear the scientific research hurdles that we apply to new drugs. Brain Tumour UK welcomes this announcement, but we need to be very clear that proton therapy is not a miracle cure for brain tumours.
"The lack of robust scientific evidence to show that proton therapy offers significant clinical advantage over modern, radiotherapy is a problem. Brain Tumour UK wants the best for patients and the Government must ensure that this new centre undertakes high quality research trials that demonstrate whether this treatment really is the best and which patients are most likely to benefit."
Many of the most reported studies showing proton therapy benefit compared it with older, less precise forms of radiotherapy. Furthermore, proton therapy is of no benefit to the most common brain tumours including gliomas, meningiomas and secondary brain cancer.
ENDS
1. The Department for Health is issuing an announcement on the new unit today (18 August 2009).
2. Proton Therapy in Clinical Practice: Current Clinical Evidence, Brada, M., Pijls-Johannesma, M., and De Ruysscher, D., Journal of Clinical Oncology, 25 (
10 March 2007
0 komentarzy 99 dni
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Atlanic Row
Brain Tumour UK Makes A Splash
Atlantic Row Duo Launch Their Charity Trip
Charlie Marlow, from Stroud and Matthew Mackaness, from Harrogate, both 26, are attempting to row across the Atlantic as part of the Woodvale Challenge in December this year. The pair launched their boat this week, to test, for the first time, the purpose built vessel and make sure it can stand up to the test of what lies ahead.
The duo's 3,000 mile journey from La Gomera in the Canary Islands to Antigua in the Caribbean has been described as "the toughest endurance race in the world" but it will all be made worthwhile if they manage to hit their target of £50,000 for their chosen charities, one of which is Brain Tumour UK.
The boys chose to support Brain Tumour UK, as it is a charity close to their hearts. During their training process, the boys have got to know Yorkshire County Cricketer, Simon Guy, who underwent surgery on his brain in February this year. Thanks to the skill of Simon's surgeon, he has made a speedy recovery, making a miraculous comeback to the 1st XI and fully supports both boys as they raise money for a cause that advances brain surgery techniques and treatments.
Although a difficult story for him to tell Simon spoke at Matthew and Charlie's launch in support of their expedition and the worthy causes they are supporting.
Simon said: "My hat goes off to them, they must be mad but they are an inspiration to us all.
"You never think anything is going to happen to you, I kept fit and healthy. But when it did it changed my life, I am so lucky to be here for my wife and two children."
For more information about their charity row and how to donate please go to their website: www.atlanticrow.com .
To join Charlie & Matthew's 'Atlantic Row' Facebook group, go to http://www.facebook.com/home.php?#/g...
0 komentarzy 138 dni
zamknij Forum
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Our Patron, Phil Tufnell in Strictly Come Dancing
przez
Brain Tumour UK
Brain Tumour UK Patron and renowned spin bowler Phil Tufnell is to star in the BBC's seventh Strictly Come Dancing series from September. He'll be dancing with Katya Virshilas who trained Richard Gere and Jennifer Lopez for the film Shall We Dance. This is her first appearance in Strictly, so the duo will face strong competition.0 odpowiedzi 12 tygodni
Looking forward to the demanding show, Phil says: “Strictly Come Dancing will be a huge challenge, but it’s nothing compared to living with a brain tumour. A brain tumour can affect co-ordination, balance, movement and any other activity controlled by the brain. Dancing with or even talking to someone you love can be impossible. Having seen the impact of this disease on two of my cricketing pals and their families, I know only too well how devastating a brain tumour can be, which is why Brain Tumour UK is so important to me.”
If you're a Strictly fan, do take every opportunity you can to vote for Phil and keep him in the show: Phil has promised to get us all the publicity he can for its duration, to help raise awareness of brain tumours. You can keep tabs on his progress in the show here. [link to http://www.bbc.co.uk/strictlycomedan... -
Brain Tumour UK gives cautious welcome to specialist brain cancer proton unit
przez
Brain Tumour UK
Brain Tumour UK has welcomed the Government's announcement that a specialist proton therapy centre is to be built in the UK over the next five years to treat brain and spinal chord tumours [1]. But the charity warned that the centres should be the focus of carefully designed scientific research to ensure that the true benefits of the therapy are measured. Furthermore, the therapy will not be of benefit to the most common brain tumours, including gliomas, meningiomas and secondary brain cancer. It will largely be used to treat rare tumours at the base of the skull, including chordomas and chondrosarcomas.0 odpowiedzi 14 tygodni
Proton therapy is a form of radiation therapy that has been in use since the 1970s. Proton particles have a large mass and should not spread so far in tissue with the result, in theory, that healthy, non-tumour tissue receives less harmful radiation. This means that a tumour could be given a larger dose of radiation than with normal radiotherapy, whilst causing less harm to the healthy brain.
But although the therapy is theoretically promising, Brain Tumour UK warns that there is a lack of robust evidence to show that it offers significant clinical advantage over modern radiotherapy. A substantial review of the evidence for proton therapy has concluded:
"The claim by proton therapy supporters that protons are the treatment of choice for chordoma and chondrosarcoma [tumours at the base of the skull] is no longer tenable based on the currently available evidence." [2]
Trevor Lawson, a spokesman for Brain Tumour UK, commented:
"The challenge here is that new technologies do not have to clear the scientific research hurdles that we apply to new drugs. Brain Tumour UK welcomes this announcement, but we need to be very clear that proton therapy is not a miracle cure for brain tumours.
"The lack of robust scientific evidence to show that proton therapy offers significant clinical advantage over modern, radiotherapy is a problem. Brain Tumour UK wants the best for patients and the Government must ensure that this new centre undertakes high quality research trials that demonstrate whether this treatment really is the best and which patients are most likely to benefit."
Many of the most reported studies showing proton therapy benefit compared it with older, less precise forms of radiotherapy. Furthermore, proton therapy is of no benefit to the most common brain tumours including gliomas, meningiomas and secondary brain cancer.
1. The Department for Health is issuing an announcement on the new unit today (18 August 2009).
2. Proton Therapy in Clinical Practice: Current Clinical Evidence, Brada, M., Pijls-Johannesma, M., and De Ruysscher, D., Journal of Clinical Oncology, 25 (
10 March 2007
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Atlantic Row
przez
Brain Tumour UK
Brain Tumour UK Makes A Splash0 odpowiedzi 19 tygodni
Atlantic Row Duo Launch Their Charity Trip
Charlie Marlow, from Stroud and Matthew Mackaness, from Harrogate, both 26, are attempting to row across the Atlantic as part of the Woodvale Challenge in December this year. The pair launched their boat this week, to test, for the first time, the purpose built vessel and make sure it can stand up to the test of what lies ahead.
The duo's 3,000 mile journey from La Gomera in the Canary Islands to Antigua in the Caribbean has been described as "the toughest endurance race in the world" but it will all be made worthwhile if they manage to hit their target of £50,000 for their chosen charities, one of which is Brain Tumour UK.
The boys chose to support Brain Tumour UK, as it is a charity close to their hearts. During their training process, the boys have got to know Yorkshire County Cricketer, Simon Guy, who underwent surgery on his brain in February this year. Thanks to the skill of Simon's surgeon, he has made a speedy recovery, making a miraculous comeback to the 1st XI and fully supports both boys as they raise money for a cause that advances brain surgery techniques and treatments.
Although a difficult story for him to tell Simon spoke at Matthew and Charlie's launch in support of their expedition and the worthy causes they are supporting.
Simon said: "My hat goes off to them, they must be mad but they are an inspiration to us all.
"You never think anything is going to happen to you, I kept fit and healthy. But when it did it changed my life, I am so lucky to be here for my wife and two children."
For more information about their charity row and how to donate please go to their website: www.atlanticrow.com .
To join Charlie & Matthew's 'Atlantic Row' Facebook group, go to http://www.facebook.com/home.php?#/g...















:'(
Hi there!!
I sadly lost my dad to a Brain Tumour 5 years ago. Not a day goes by where i don't think about him.
xx
Hey
My Cousin Died With Brain Tumour
if there was anyway to get her back i would try
I always Think about her
And i hope People are aware of this
!!
iloveyouRebecca
Love
Tia
hiya gr8 page. my son Nathan has Hydrocephalus (fluid/water on the brain). plz show yur support and become a member of my group.xxx
RAISE MONEY FOR CHARITY AND HAVE FUN BY ADOPTING A DUCK!
On 2nd Spetember 165,000 rubber ducks will descend on the River Thames - hopefully setting a Guiness Word Record and raising £500,000 for charity in the process.
It costs justs £2 to adopt a duck (and a recommended donation of £3 to a charity), with a chance of winning £10,000 in the process!
So visit www.thegreatbritishduckrace.co.uk and raise money for Brain Tumour UK!